Hi everyone! I wanted to discuss my diagnosis of fibromyalgia and how I managed to overcome most of the chronic pain and fatigue I experienced that has greatly affecting my life and ability to work. Fibromyalgia is essentially characterized by chronic pain throughout the entire body. If you ask someone with fibromyalgia where they hurt, a common response is, “Where don’t I hurt.” That’s how it was for me. Pain everywhere. It also is often accompanied by fatigue, memory problems, sleeping problems, and the list goes on. And with me, I had this chronic pain and fatigue, I had the brain fog and couldn’t remember, and I couldn’t sleep well. And then during moments of flare ups, it was so bad I just wanted to sleep all day and get away from it.
Now I’ve discussed problems that have surfaced in my life in just 2016 that put me into a state of being unable to function properly and go towards my aspirations. If you would like to see those previous two health videos, I’ll have annotations and links in the description. [My Health (part 1) | My Health (part 2)] Part one is where I was having a lot of problems, and part two is when I found a solution to a great deal of those problems and started to feel better. However, this did not remedy all the problems. I was still in pain and fatigued. Despite the exercise and healthy diet I have, I continued to have problems, but they were less. The exercise especially has made a big difference. I workout and am continuously looking for ways to improve my health and physical body. I am very interested in physical exercise. I love it. When I started, it was difficult and my flexibility was limited. And my spine was the worse of all because I have a curved spine. While that probably can never be corrected, I have more flexibility now. The hardest part was still the fatigue.
Now I’m sure you are wondering how I got diagnosed with fibromyalgia. The story is actually quite an interesting one that you may not have heard before. It took years to figure out what the actual problem was. I’ve always had spinal problems and pains in my body. My body makes so many cracking and popping noises, and always has, but it’s worse these days then it was years ago. Anyway, I will just come out and say that for those of you who are not aware, I am a male to female transgender person. I was born a male and have transitioned to female and even had surgery. This ties into my diagnosis because I had pain inside my vagina years after surgery, which was in 2013, which at the time of making this video it’s late 2016. I knew there were issues early on, which were treated multiple times, but then I went back to the surgeon fearing that I would need another surgery to fix the problems. Well, it turned out that everything was fine and healed up the way it should be. This concerned me since I was wondering what the problem was then. She suggested, however, that I see a doctor to see if I have fibromyalgia. I never heard of it before and when I researched, it made a lot of sense.
I then managed to get into a rheumatologist to check and he first ran some blood work to rule out arthritis, which runs in my family. There was no inflammation or arthritis, so I was then given the diagnosis of fibromyalgia because I fit all the criteria. Another concern was my low white blood cell count. What could’ve caused that? Well when I mentioned it to my doctor, he checked it again, and my white blood cell count went back up quite a substantial amount to a normal range. I was also tested for the Epstein-Barr virus and my levels were quite high. The reference range is from 0-17.9 and one of mine was 198. I did some research and discovered some fascinating things about the different stages of the virus. Stage one is you have the virus in your system, but it’s dormant. Stage two is when it begins to attack your body, often in the form of mononucleosis, or mono. Stage three is when it goes to your organs, such as the thyroid and can cause thyroid issues. And stage four, the final stage, is when it attacks your central nervous system which can cause a myriad of health problems such as chronic pain and fatigue, fibromyalgia, arthritis, and many other chronic illnesses that have no cure and are often a mystery to the medical community.
From a rather young age, I think around age 10, I started getting strep throat every year. But, one year, I think when I was 16, it was really bad, and also the last time I got it. It was so bad that it spread to other areas of my body, but still in my sinus area. It was in my ears which was incredibly painful. When I was sick with this, I also developed mono. I don’t know how I got it, but it was already in my system due to the Epstein-Barr virus. That’s when it progressed and that was the worst sickness of my life. I had some minor thyroid problems some time later. My thyroid levels were slightly underactive, which later went back up due to my change in diet around the same time. So, that was when stage three ended and stage four progressed because I started developing chronic fatigue and pain not too long after that. It made all the sense in the world to me that all this came about because of how everything occurred in my life. I got the Epstein-Barr virus and it was dormant for who knows how long, then got mono which made it active, which it then went to my organs and thyroid, causing some problems, and then progressed to my nervous system which has since caused, and will continue to cause for the rest of my life, chronic pain, chronic fatigue, and many other problems that no doctor will have a cure or solution for.
So that is how it appears to have come about. But what cures have I found? Well fortunately I can say now that I am about 75% to 85% pain free. Fatigue can still be an issue some days, as well as the pain be amplified some days, but I’m able to function and live my life again. There are three things that have helped that I wanted to talk about. There are three products I use that have helped me.
The first is turmeric. This is a spice that has anti-inflammatory properties. The problem though is that fibromyalgia is not inflammation so this is why I rank it least most effective of my three treatments. I think it still helps though and am going to continue to take it. You want to get the kind with black pepper extract because it makes it more potent.
Second is magnesium. This is a powder that you add to water. I do a teaspoon twice a day and it really helps with pain and relaxation of the body and joints. This is an effective way of taking magnesium versus a supplement like a pill because it is more available to the body and easier to absorb, and it’s helped greatly.
And the most effective treatment is CBD, which stands for cannabidiol. It comes from the cannabis plant, so hemp and marijuana. This compound is non-psychoactive, unlike THC, so you are not going to get high off it. Although, the first few weeks I took it, I did feel much more calm and focused, and it did affect my mind slightly. What is awesome about the CBD is that it’s completely legal. The reason it is legal is because it’s non-psychoactive and it is derived from hemp, not marijuana. Although, the ratio of CBD and THC can be even more beneficial, I do not have this experience because I have never tried marijuana. If I were to be able to legally obtain it for medical purposes, then I would go for that. I would choose a type that has high CBD content and low THC content.
The CBD is amazing. After I was taking it for a few weeks, my pain almost vanished. I was finally able to do things without so much pain. I noticed it especially when sitting down on my computer, when driving, and when just sitting in a chair for a while in general. Then my fatigue lessened as well. I was able to be more efficient at my working out and running. Even another thing I noticed was twitching. Whenever I would relax, I would notice a lot of fidgetiness and muscle spasms and twitching. Sometimes when I was trying to sleep, my leg would go flying out like I was kicking it out. That doesn’t happen nearly as much now.
You can get the CBD in many forms. You can get it in oils that you use under your tongue, edible foods, topical creams, and even suppositories. Applied topically it has helped quite a bit with aches and pains. And going back to my original problem of the vaginal pain, I just use one drop of the oil inside the vagina and it prevents the pain that I’ve experienced when using the dilators. I think it’s even increased my sex drive too which is amazing since I didn’t have any, and now I do, like after so many years it’s back.
I love the CBD and it’s been the most helpful treatment for me. Marijuana is the most helpful treatment for those with fibromyalgia and chronic pain. You may want to use the cannabis plant to help, and you can legally even without a medical marijuana license. You can find CBD in stores and online. It is pricy, depending on how much you need. I bought it at my grocery store and that helped greatly. Then I switched over to a higher concentration so I could use less and it would last longer. Regardless, it has helped and it’ll be something I continue using to make me able to function again.
If you have any autoimmune disorder or pains and fatigue, it’s so important to keep your immune system up and healthy. Don’t eat toxic crap and figure out what foods cause you problems and what works for you. The best plan of action is to first begin exercising and staying active, as well as eating healthy foods your body needs.
If you have any comments regarding possible treatments, or what you have managed to overcome with your own struggle with fibromyalgia or chronic pain, please feel free to share your experiences with me. Thank you for listening to my story and you all have a wonderful day!